The image shows the “Make the Right Real in Malaysia” logo of The OKU Rights Matter website and a protest by a group of disabled people holding placards for disability rights for people in Malaysia

Alexandra Elaine – UK’s first Deafblind Doctor

Dr. Soania Mathur reflects on her struggles with sleep disruption caused by Parkinson's disease, detailing the physical challenges she faces at night. Despite her overwhelming fatigue, she navigates her environment, mindful of her husband's sleep. Acknowledging the disease's impact on loved ones, she finds solace in the dawn, reminding herself of gratitude amid adversity.

Alexandra Elaine – UK’s first Deafblind Doctor

Alexandra Elaine Adams is set to graduate in 2026, completing her medical training at Cardiff University, to become the UK’s first Deafblind doctor. Alexandra, who has less eyesight but more insight than many people, intends to pursue palliative medicine, emphasising dignity, positivity, and patient-centred care. As of 8 March 2026, Alexandra’s memoir is near completion, adding to her portfolio of writing, art, and patient advocacy. Alexandra is the Founder of Pandemic Pianos, a musical project supporting National Health Service (NHS) hospitals in the UK; she is also active in awareness campaigns for disability rights that challenge stereotypes. Alexandra has had to deal with prejudice in the medical training environment. Health challenges have delayed her graduation. With support, Alexandra has continuously balanced her medical studies with activism, demonstrating resilience. Her visibility strengthens calls for inclusive medical education and healthcare systems. Alexandra’s story resonates globally, showing how resilience and advocacy can reshape professional fields.

Alexandra Adams – UK’s First Deafblind Medical Student by Iyasu Medical Bags

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