The collection “What Parkinson’s Feels Like,” featuring illustrations by Barbara Salsberg Mathews, captures global experiences of individuals with Parkinson’s disease. It emphasizes the disability’s profound impact on identity and autonomy, advocating for recognition beyond physical symptoms. The work promotes empathy, structural change, and highlights the importance of listening to lived experiences in addressing disability rights.
Elijah Irwin, who lost his sight at 34, transformed his writing journey from personal documentation to advocacy for the Blind community. Through accessible technology and his website, CoolHappenings®, he shares knowledge and empowers others. Writing became his voice, enabling connection and teaching, marking a significant shift in his identity.
Dr. Soania Mathur reflects on her struggles with sleep disruption caused by Parkinson’s disease, detailing the physical challenges she faces at night. Despite her overwhelming fatigue, she navigates her environment, mindful of her husband’s sleep. Acknowledging the disease’s impact on loved ones, she finds solace in the dawn, reminding herself of gratitude amid adversity.
Malaysia aims to become a dementia-inclusive society, enhancing care services and promoting dignity for nearly 300,000 affected individuals through inclusive policies and engagement.
Dr. Soania Mathur reflects on her struggles with sleep disruption caused by Parkinson’s disease, detailing the physical challenges she faces at night. Despite her overwhelming fatigue, she navigates her environment, mindful of her husband’s sleep. Acknowledging the disease’s impact on loved ones, she finds solace in the dawn, reminding herself of gratitude amid adversity.
A Global Civil Society statement in defence of the UN & Multilateralism The OKU Rights Matter Project joined in endorsing the global civil society statement urging defence of the United Nations as the global architecture for multilateralis 1,200+ Feminist Civil…
Parenting children with disabilities in Malaysia involves profound emotional challenges and societal pressures. Parents often cycle through feelings of guilt and acceptance while seeking support and redefining success for their children. Community and advocacy are essential for creating change, fostering understanding, and ensuring visibility for both parents and their children within society.
The coalition SUARA16% advocates for amending Malaysia’s Persons with Disabilities Act, citing that free education alone does not ensure access to higher education for disabled individuals. Despite acknowledging barriers in school systems, current education plans lack concrete reforms. The act requires strengthening to enforce rights and enhance inclusion of persons with disabilities in education.
The Communications and Multimedia Content Forum of Malaysia (CMCF) NG Lai-Thin of The OKU Rights Matter Project was part of the initial working group on drafting the Disability-inclusive Language Guidelines. The drafting of the Guidelines is the initiative of The…
Press Items that Illustrate Challenges to Accessing Justice: Case of Deaf Grab (e-hailing service) Driver Form RCI to probe assaults linked to royalty, Latheefa says, by MalaysiaKini, 26 October 2024 While Ong waits for justice, PM recalls being subjected to…
Sing to Remember Series by CNA Insider (YouTube) Can Singing Slow Dementia? I Start a Dementia Choir to Find Out Part 1/2, 24 February 2023. Jason Lai, Principal Conductor, Yong Siew Toh Conservatory, Singapore, puts together Singapore’s first choir that includes persons…
Facing Dementia Series by Channel News Asia (YouTube)
