Beyond Free Education: Why Disability Inclusion Needs a Stronger PwD Act
22 January 2026
Statement by SUARA16%
SUARA16% is a coalition and working group formed to engage in the amendment process of the Persons with Disabilities Act, 2008. It is made up of disabled activists, Organisations of Persons with Disabilities (OPDs), and allied advocates working together to push for CRPD-compliant legal reform.
The 16% represents a commonly cited estimate of persons with disabilities as the core rights-holding constituency under the Act, while recognising that disability policy affects a far wider group, including families, care partners, and communities.
Page Contents
Malaysia’s education roadmaps for the next decade presents an ambitious vision. They speak of equity, access, wellbeing, and human-centred development, framed as universal aspirations meant to benefit every learner.
One concrete measure that directly impacts disabled persons stands out: free access to education. This is important. Cost is a long-standing barrier, particularly for families managing disability-related expenses. Removing fees lowers one obstacle to entry. But free education alone does not determine who gets to progress, who completes, and who is quietly filtered out.
To understand the gap, we have to look earlier than university. Official higher education data show that students with disabilities make up only around 0.18% of enrolment in institutions of higher learning, roughly 5,600 OKU students nationwide. This underrepresentation is not created at tertiary level. It is produced much earlier from the compounded impact of exclusion across mainstream schooling, special education settings, and the transition points between them.
Within the school system, Malaysia operates Special Education Integration Programmes (PPKI) embedded within mainstream schools. These programmes serve tens of thousands of children with disabilities and are sustained by a dedicated but over-stretched and under-resourced special education workforce. While PPKI has expanded, it was never designed as a clear or reliable pathway into higher education.
Many children in PPKI follow modified curricula, face limited subject offerings, or are channelled early into narrow pathways. A significant number complete schooling without sitting for, or qualifying with, the Sijil Pelajaran Malaysia (SPM), which remains a prerequisite for entry into many tertiary and training programmes. Transition planning between PPKI, mainstream classes, secondary school, and post-school options remains uneven and dependent on individual schools and families, rather than systemic guarantees.
The education plans acknowledge uneven access and underrepresentation. However, beyond fee removal, they do not clearly explain how mainstream school pathways will be strengthened so that disabled students can progress towards higher education on equitable terms.
Access is only the first step. Education also involves choice, progression, and completion. A student may be formally admitted, yet still face restrictions on subjects, assessment methods, or progression routes because systems are not designed inclusively to accommodate diversity. These constraints rarely appear as explicit exclusions. The impact accumulates over time.
This pattern continues into higher education admissions. The UPU online registration system, which governs entry into public institutions, has long raised concerns among parents, students and advocates. Automated eligibility criteria and rigid programme requirements can quietly discriminate and narrow the options available to otherwise qualified OKU applicants. These barriers are embedded in systems never designed with disability inclusion at the forefront.
The current roadmap does not clearly explain whether these structural barriers have been addressed. Nor does it safeguard disabled students from being channeled into default narrow pathways based on assumed capacity rather than actual support needs.
The plans also emphasise earlier entry into formal education and smoother transitions across schooling stages. For disabled children and their families, this raises a fundamental question: are schools equipped with trained staff, accessible environments and flexible pathways? Or, does the burden of adaptation continue to fall on families when systems fail to adjust and be inclusive? Seen this way, the higher education gap is inseparable from the school pathway that precedes it.
Education roadmaps matter because they set direction. But they are not law. They do not create enforceable rights, mandate accessibility and reasonable accommodation, or provide remedies when institutions fall short. In Malaysia, those obligations rest with the Persons with Disabilities (PwD) Act, 2008.
This is where the gap becomes clear.
When participation remains low, when course choices are quietly filtered away, when pathways narrow rather than open, these are outcomes, not aspirations. Outcomes demand responsibility. This is why attention must return to the long-promised amendment of the PwD Act, 2008.
Without a strengthened PwD Act, the ambitions cannot be realised. Policy intent will continue to float above practice: unanchored. Free education may open the door, but without legal duties and enforcement, there is no guarantee of what follows.
A strengthened PwD Act must require action to uphold and protect the rights of disabled persons, to:
- Reasonable accommodation and accessibility in education, from school through to university and vocational training;
- Mandated accessible pathways, flexible and diverse assessment, and non-discriminatory progression;
- Removal of systemic barriers embedded in admissions systems, curriculum design, and institutional decision-making;
- Accountability and timely rectification when exclusion happens.
Education shapes who participates in the economy, who secures dignified work, and who lives independently. In an ageing society, disability will touch more families over time. The cost of exclusion compounds across generations, weakening national resilience. Disabled people do not need to be made marketable. We need systems that allow us to start from the same line.
The education roadmaps show where Malaysia MADANI wants to go. The urgent amendment and strengthening of the Persons with Disabilities Act, 2008 must ensure disabled people are not left behind. If inclusion is truly a national aspiration, it must exist not only in plans, but in law, as a matter of justice, not case-by-case discretion.
Endorsed by 210 individuals and organisations from the OKU community and allies.
Endorsed by
- Beatrice Leong, Autistic Gender-Disability Activist, Independent Documentary Filmmaker.
- Ng Lai Thin, Inclusive Education Specialist, Disability-Inclusion Advocate, Author of Small Steps, Big Changes for Preschool Inclusion.
- Dato’ Dr Amar-Singh HSS, Consultant Paediatrician, Child-Disability Activist.
- Yuenwah San, disability rights and intersectionality advocate, The OKU Rights Matter Project.
- Anit Kaur Randhawa, Parent Advocate, Advocate & Solicitor and Podcaster, Kita Family Podcast.
- Meera Samanther, Parent Advocate, EXCO Member of AWL & WAO.
- Jo-Anne Leslie de Vries, Parent Advocate, Advocate & Solicitor.
- Tracy Tai Chooi Wah, Parent Advocate for Children with Disabilities.
- Alvin Teoh, Parent Advocate, National Family Support Group for Children & People with Special Needs.
- Shafique Khatib, a person with bipolar disorder, volunteers for disability advocacy.
- Damai Disabled Person Association Malaysia
- Parent members of Persatuan Ibu-bapa dan Guru (PIBG), SJK(C) Chung Hwa Damansara, Petaling Jaya.
- Family Frontiers.
- CRIB Foundation (Child Rights Innovation & Betterment).
- All Women’s Action Society (AWAM).
- Women’s Aid Organisation.
- Wong Hui Min, President of National Early Childhood Intervention Council (NECIC).
- Malicca Ratne, President, Soroptimist International Pearl of the Orient.
- Dr Elijah Irwin, Member, Harapan OKU.
- Christine Lee, Disabled Person and Advocate for: Barrier-free Environment and Accessible Transport (BEAT).
- Kamariah Rahmah, Lawyer, OKU rights ally.
- Dr. Zahilah Filzah Zulkifli, Consultant Paediatrician, Certified SPELL Master Trainer.
- Khor Ai-Na, CEO, Asia Community Service.
- Annie Ong Hwei Ling, President of the National Organisation of Malaysian Sign Language Instructors (NowBIM), and Deaf Advocate.
- James Ho, Malaysian Sign Language Interpreter Trainee, JUPEBIM.
- Calysta Tay, Malaysian Sign Language Interpreter, JUPEBIM.
- Teong Chia Ying, Pediatric Occupational Therapist.
- Lucy Lim Yoke Kwan, President JUPEBIM, Malaysian Sign Language Interpreter for the Deaf.
- Rafidah Rafizah Ahmad, President of Gabungan Anak-Anak Palsi Serebrum (GAPS).
- Ch’ng B’ao Zhong, Autistic Person, Licensed and Registered Counsellor.
- Dr Zubaidah Ibrahim, Advisor JUPEBIM & MyBIM.
- Yap Sook Yee, Parent and advocate for children with disabilities.
- Gigi Teoh, Deaf Ally, Inclusive Employer.
- Intan Nahariah bt Yaacob, Parent Advocate & Co-Founder WonderParents.
- Lim Xin Ning, Malaysian Sign Language Interpreter Trainee, JUPEBIM.
- Chong Kai Zhen, Malaysian Sign Language Interpreter (JUPEBIM) & MyBIM.
- Chin Saw Sian, Paediatrician.
- Yap Siew Ching, Senior Associate Research & Statistics Department of Association of Asia Pacific Airlines, Parent of young kids in Malaysia.
- Lee Khiam Jin, PhD, parent of autistic young person.
- Eugene Cheong, Certified Neurodiversity Coach, Founder & Advisor BeBOTS Discover LLP.
- Fong Pik Wan, mother of a 6-year old child with Autism.
- Tan Ying Jie, mom of Autistic child.
- Peggy Lam, Lead Coach and Special Education Consultant, Bridging Hope Transition Learning Centre.
- Chu Li Yen, mum of Autistic child.
- Dorothy Chiong, Special education home tutor.
- Hana Hatim, Aunt of an autistic 9-year old child, PIBG member of SJK(C) Chung Hwa Damansara.
- Joyce Wong, mum of an 11-year old autistic child.
- Samantha Yuen, mum of an autistic 11-year old boy.
- Azeana Azman, Founder of Malaysian Deaf Diversity Organisation (Madeo)
- Rafeal Rizal Rusdi, Founder CAHAYA (Coalition of Adult Health and Youth Advancement) Initiative; Advocate of (accessible) Mental Wellness for all.
- Angeline Tan, Educator.
- Cheah Boon Eu, Medical Doctor, Neurodivergent individual.
- Bala Saravanan, Father of an 16-years old Autistic daughter, Member of NASOM.
- Shahbina Khurshid, Mum to a Down Syndrome daughter, Chairperson of the Alumni Kiwanis Down Syndrome Foundation.
- Fong Yee Man, mom of an Autistic child.
- Ng Yee Yuen, mom of an Autistic child.
- Liew Pin Yuen, mom of ADHD & Dyslexic child, special needs educator.
- Michael Phung, manager, shelter for sick refugees PERCH.
- Ng Yuen Yee, mom of a child with mental disabilities.
- Anusya Roy, mum of a child with Autism Spectrum Disorder
- Lee Ai Ling, Deputy Treasurer of Alumni KDSF
- Ting Ching Teing, Interior Designer, mom of ADHD
- Tan Shi Yee, adult with Autism & ADHD.
- Khor Hung Teik, father of autistic children.
- Moses Choo, Blind Advocate.
- Asher Khor, Person with Autism, Quality Assurance Engineer-cum-Environmental Safety and Health Officer.
- Teh Siew Hong, mother of autistic children.
- Ashriel Khor, Person with Autism, Biotechnologist, Junior Study Coordinator in Drug Research.
- Ng Ti Min, mother of an ADHD child.
- Chew Pui Yan, parent of 2 ASD & ADHD children
- Cheang Tze Kin, father of Autistic child.
- Keng Wee Teik, medical doctor.
- Anthony Chong, PhD, Deaf advocate and researcher.
- Shyam Priah, CEO Yellow House KL, Neurodivergent Individual (ADHD & Dyscalculia).
- Gracious Yoong Chen Xin, adult with Autism & ADHD, neurodivergent self-advocate.
- Lee Chee Hoe, Father of an ADHD child.
- Chuan Meng Choo, mother of an ASD & ADHD child.
- HL Wee, mother of an ASD boy.
- Jason Tong, parent advocate, Entrepreneur.
- Yogeswari Veerakathy, Bahasa Isyarat Malaysia instructor.
- Albert Wong Tuong Chui, Deaf Advocate and Chairperson of Sarawak Deaf Community Service Association (SDCSA).
- Elias Hussein, Ophthalmologist and Lecturer.
- Alicia Chui, Autistic & Advocate, Founder of Talent Spectrum – Inclusion as the Future of Work.
- Quah Joo Lee, Father of Child with Autism & ADHD.
- Geok Yin, Mother of Child with Autism & ADHD.
- June Yap, mom of a teenager with Autism and ADHD.
- Siva SK, Rare Disease and disability advocate.
- Jessica Mak, President of Malaysian Sign Language and Deaf Studies National Organisation (MyBIM).
- ChristieTan, mom of a daughter with ADHD.
- KIMBERLY NGO, DEAF ADVOCATOR.
- Callie Poh, mother of a 9-year-old son with autism.
- Anna Tan, Aunt of Slow Learner.
- Teh Geok Yin, OKU ally.
- Ho Koon Wei, Deaf sign linguist, member of MyBIM & JUPEBIM.
- Joulyn Tiong, mum of a child with teenage Autism.
- Foo Lun Leong, MyDAWN member.
- Juliet Yong – Deaf BIM Instructor (Penang), Assistant Secretary (NowBIM) and Member of DAWN & MyBIM.
- Jason Tee, Parent of a child with Autism.
- Dr Wong Woan Yiing, Paediatrician.
- Sum Yee Mun, Engineer.
- Akira Chua, JUPEBIM.
- Moong Lee Peng, parent of a child with rare disease.
- Dato Jimmy Tan Jin Ming (Ph.D), stroke survivor, peer supporter and OKU Ally.
- Chang En Er, Sunday school teacher of a boy with Autism.
- Mohd Farhan bin Kamarzaman, Deaf, Deaf Media & Technology Association.
- Melanie Oh, Parent and Vice-Chair of the Alumni of Kiwanis Down Syndrome Foundation (Alumni KDSF).
- Thilakavathy Shanmugam, Founder, SEN Enrichment Care Centre.
- Chew Siok Cheng, Lecturer of Early Childhood Education Program.
- Elyantie Mohamed, mom to child with Down Syndrome.
- Haymasuthan A/L Periasamy, President of Pertubuhan Advokasi dan Kesejahteraan Pekak Malaysia (DAWN) (Deaf Advocacy and Well-being National Organisation, Malaysia).
- LEE FERN YING, mom of child with Autism.
- LIYU MIN DAT, Father of child with Autism, 8 yrs old.
- Lee Sue Lynn, mom of a child with ADHD and a child with a rare disease.
- Jennifer, mother of child with Down Syndrome.
- Daniel Wong, father of a child with GDD.
- Julian Tan, Parent of child with Down Syndrome and Secretary of the Alumni of Kiwanis Down Syndrome Foundation (Alumni KDSF).
- Anthony Lim, Malaysian Sign Language Interpreter, JUPEBIM.
- TEH LAY CHIN, mom of child 6 years old with Autism.
- Jean Phoon, mother of a 12-year old Down Syndrome child.
- Selina Ooi Shin Ping, 1st Malaysian Deaf Blogger & Deaf Boleh! Founder.
- Lim Eng Chuan, Deaf, Fintech Software Engineer.
- Choon Ching Ju, Mother of an Autistic Child.
- Ho Yock Lin, Aunt of a down syndrome teen.
- Joanne Cheah, Educationist and mother of a Deaf child
- Sherrene Teh, Registered Music Therapist.
- Isa Ismail, Sustainability Practitioner, DEI Advocate, former Co-lead for CEO Action Network DEI Workstream, and father to a 10-year old child with Down Syndrome.
- Tan Kai Yee, parent of a child with Down Syndrome.
- Ho Xie Man, Mother of an Autistic child.
- Chan Shew Lan, mother of a teenage girl with Down Syndrome.
- Alia Sumathi Annamalai, Early Interventionist, Early Intervention Program Coordinator and Early Childhood Developmental Advisory (Yayasan Ipoh, Persatuan Pemulihan Sultan Azlan Shah).
- Mutharasapan A/L Lakshmanan, Deaf, Chairman of Deaf Media & Technology Association.
- Kiran Kaur, Mother of Autistic Child.
- Suzy Chung, an adult with ADHD and mother of an ADHD teenager.
- Angela Beh, mother of a preteen with cerebral palsy.
- Bernard Hiew, father of a preteen with cerebral palsy.
- Chooi Chin Ying, Senior Clinical Study Coordinator, OKU Ally.
- Grace Gan, Enabling Academy Manager, Yayasan Gamuda.
- Foo Han Piew, Yayasan Gamuda, Enabling Academy Stakeholder Engagement Lead.
- Susielawatie Bt Hassim, Setiausaha Persatuan Alumni SMPK Vokasional Shah Alam, Selangor (PASMPKVSA).
- Edward Wong, Deaf Graduate, HELP University, Subang 2.
- Alia Ali, Founder of AWARENESS AGAINST SUICIDE (AWAS) & mother to 16 year old girl with ADHD & 13 year old girl with Autism & ADHD.
- Dr. Matthew Oswaldo Velazque, Member, DAWN and MyBIM.
- Beatrice Ting, Producer at XZV Studio. Currently developing an animated film titled Kappa, which tells the story of an autistic boy.
- Monica Mohan, Educator.
- Low Yifan, Mother of an Autistic child.
- Koay Saw Khim, mother of a child with Down Syndrome.
- Agnes, a mother of an Autistic child.
- IMPACTO Sdn Bhd.
- Noor Emeera Hashim, Lead of CEO Action Network’s (CAN) DEI Workstream and Chief Impact Officer of IMPACTO Sdn Bhd.
- Ainaa Farhanah Amali, adult living with Spinal Muscular Atrophy (SMA).
- Annie Yew, mother of 13 years old ASD teenager.
- Jasniza Johari, OKU ally.
- Tan Poh Kiang, teacher of special needs children.
- Tan Soo King, teacher of special needs children.
- Tan Foo Lang, teacher of special needs children.
- Teh Ann Zhe, university student.
- Izyan Nadiah Md Noh, Parent and advocate for children with disabilities & inclusive education.
- Hartati Mohd. Hussain, Author of Empowering Persons with Disabilities – Strategic Guide for Policymakers & Change Agents.
- Bibiana Tang Jia Yieng, Vice President of Malaysian Sonographers Association.
- Dr. Kohila Devan, father of neurodivergent children.
- Dr. Reshma Stanislaus, mother of neurodivergent children.
- Chan Lee Kian, Parent of Autistic child, and SEN teacher.
- Melissa Thean, parent of a Down Syndrome child.
- Devi Anguthan, mother of a child with Down Syndrome.
- Dunstan SG Lim, Chairperson, Sarawak OKU Skills Development Association (SOSDA).
- Yeap Yen Ying, social worker and OKU ally.
- Cheng Hwa Chee, Community service volunteer and OKU ally.
- Yeng Su Ying, mother of Autistic child.
- Elizabeth Qi Ying Reid, sibling of Autistic person.
- Lim Kian Boon, OKU ally and caregiver.
- Loo Shee Kit, OKU ally.
- Ken Loh, Blind advocate.
- Rajeevan Gopala Krishnan, Blind advocate.
- Lim Tien Hong (Ph.D), Blind advocate.
- Anne Sivanathan, President of the Association of the Inclusive Outdoor Classroom.
- Dusim Siong, Blind retired Government Welfare Officer, Kuching.
- Prem Kumar, Principal Development Coach, Advocate, Xtraordinary School & Care2Run.
- Wong Fei Chin, mother of Autistic teen.
- Ivy Philip, EmployAble, Special Needs Educator of over 15 years.
- Ng Kok Ping, Father of Autistic child, Advocate in Southern Johor.
- Dr Loo Choo Hong (PhD) – university lecturer and father of son with both ADHD and Autism.
- Shalini Vasathaver, Educator and mother of Autistic teen.
- Nurul Atika binti Mohd Rosli, Special Need Educator.
- Irma Yazreen Yusoff (PhD), Mother of 2 Autistic children and a Senior Lecturer, EXCO for Dyslexia Association Sarawak, EXCO for Child and Adolescent Learning and Wellbeing Centre.
- Persatua John Samuel , Lecturer.
- Chow Jo-Ann, EmploAable, Special Needs Educator and Job Coach.
- Tan Wan Qing, InSchool, Special Needs Educator.
- Iva Yee May Yan, EmployAble, Special Needs Educator and Job Coach.
- Lim Kuan Keat, parent of a child with Down Syndrome.
- Norsakinah Hassalli, Special Needs Educator.
- Dr Najiha Asari, Parent and advocate for children with disabilities.
- Mooi Wei Yin, EmployAble, Special Needs Support and Job Coach.
- Donald Law, Secretary General, Pertubuhan Orang Cacat Sarawak (POCS).
- Tham Sin Ee, member of MyBIM & JUPEBIM.
- Dr Choy Sook Kuen, Founder Oasis Place, Board Member Entrepreneur Organisation Asia Bridge Forum (EO ABF Larger Purpose), Advisor Special Educator Network International Association Malaysia Chapter (SENIA Malaysia), Kita Family Podcaster.
- Nori Abdullah Badawi, Chairman Yayasan Budi Penyayang Malaysia, Owner WRTS Kid’s Gym, Kita Family Podcaster.
- Nik Nadia Nik Mohd Yusoff. Mother of 2 Autistic teenagers, Podcaster of Kita Family Podcast.
- Desiree Kaur, Project Haans, Kita Family Podcaster.
- Wan Arif Mahmud bin Wan Umar, Bahasa Isyarat Malaysia Instructor and Deaf Interpreter Sarawak Deaf Community Services Association (SDCSA).
- Dr Balkis Nachiah, medical officer and mother of 2 special needs children.
- Siti Intan Azura binti Othman, mother to a 15 year old daughter who is half-blind (microphthalmia)
- Dr. Haseanti Binti Hussein, mother of 4 ADHD children, a Public Health Physician, Dyslexia Association of Sarawak.
- Azlinda Zainal, Mother of a Special Needs Son.
- Nur Syafiqa Hazirah Binti Razali, co-chair Sarawak CSO-SDG Alliance, member Mental Health Association Sarawak, bipolar survivor.
- Dyg Korina Binti Abg Mansor, retired PPKI teacher.
- Puan Anita Abu Bakar, President, Mental Illness Awareness and Support Association (MIASA) Malaysia.
- Khoo E-May, Late-diagnosed Autistic and ADHD adult, Accredited HRDC Trainer.
- Khoo Jie Ying, special educator and inclusive fitness instructor.
- Chen Siew Yee, Mother of a Down Syndrome daughter.
- Ivan Ho, Befrienders Penang
- Nelson Gee, Father of low- vision son.
- Tung Peh Sin, Engineer & care partner-mother of OKU son.
- Chui Zhi Qian, OKU bead craft artisan.
- Chui Mun Hoe, Engineer & care partner-father of OKU son.
- Naziaty Mohd. Yaacob (Ph.D), OKU & Director of Xiron ES Accessibility Solutions, advocate for disability-inclusive accessibility, and host-content creator of Talk Architecture podcast (on architecture design and education
Featured
Beyond Free Education: Why Disability Inclusion Needs A Stronger PwD Act — 210 Individuals And Organisations by Codeblue
Beyond free education: Why disability inclusion needs stronger legislation by Aliran

