The collection “What Parkinson’s Feels Like,” featuring illustrations by Barbara Salsberg Mathews, captures global experiences of individuals with Parkinson’s disease. It emphasizes the disability’s profound impact on identity and autonomy, advocating for recognition beyond physical symptoms. The work promotes empathy, structural change, and highlights the importance of listening to lived experiences in addressing disability rights.
Elijah Irwin, who lost his sight at 34, transformed his writing journey from personal documentation to advocacy for the Blind community. Through accessible technology and his website, CoolHappenings®, he shares knowledge and empowers others. Writing became his voice, enabling connection and teaching, marking a significant shift in his identity.
Dr. Soania Mathur reflects on her struggles with sleep disruption caused by Parkinson’s disease, detailing the physical challenges she faces at night. Despite her overwhelming fatigue, she navigates her environment, mindful of her husband’s sleep. Acknowledging the disease’s impact on loved ones, she finds solace in the dawn, reminding herself of gratitude amid adversity.
Dr. Soania Mathur reflects on her struggles with sleep disruption caused by Parkinson’s disease, detailing the physical challenges she faces at night. Despite her overwhelming fatigue, she navigates her environment, mindful of her husband’s sleep. Acknowledging the disease’s impact on loved ones, she finds solace in the dawn, reminding herself of gratitude amid adversity.
Parenting children with disabilities in Malaysia involves profound emotional challenges and societal pressures. Parents often cycle through feelings of guilt and acceptance while seeking support and redefining success for their children. Community and advocacy are essential for creating change, fostering understanding, and ensuring visibility for both parents and their children within society.
Sing to Remember Series by CNA Insider (YouTube) Can Singing Slow Dementia? I Start a Dementia Choir to Find Out Part 1/2, 24 February 2023. Jason Lai, Principal Conductor, Yong Siew Toh Conservatory, Singapore, puts together Singapore’s first choir that includes persons…
Facing Dementia Series by Channel News Asia (YouTube)
The Lost Girls by Beatrice Leong by Beatrice Leong in The Vibes (Malaysia) This series on autistic women highlights new narratives and perspectives of autism from the perspective of an autistic woman.
Autism from the Inside Out by Beatrice Leong by The Vibes, Malaysia. Produced by Shazmin Shamsuddin, featuring the voice of Beatrice Leong
Ernest Teoh shares his experiences as a blind individual navigating a sighted world through a YouTube series. The series consists of seven episodes, each detailing different aspects of his journey and challenges. Viewers can find the episodes linked in the content for in-depth exploration of his story.
