OKU Rights Matter Project, Author at OKU Rights Matter

Beyond the Hashtag: What “Nothing about Us without Us” Actually Means

The phrase “Nothing about Us without Us” highlights issues of tokenism in Malaysian policymaking. Organizations often engage communities superficially, failing to include them in meaningful decision-making. True inclusion requires co-designing policies with affected groups, granting them real power and authority, rather than merely informing them of decisions already made.

Disability Pride Month

The Disability Pride Flag, designed by Ann Magill in 2019 and updated in 2021, symbolizes various disabilities through specific colors. The flag represents mourning for victims of ableist violence and promotes visibility for disabled individuals. Its design conveys messages of hope, creativity, and acknowledgment of diverse disabilities within the community.

10 Things People Often Miss in Accessibility Compliance When Drawing Up Plans

The article highlights ten common mistakes in accessibility compliance observed among architects and designers. Key oversights include inadequate ramp design, insufficient space in accessible toilets, and poor placement of switches and doors. It emphasizes the importance of inclusive planning from the outset and designing for real user experiences to enhance usability and safety for everyone.

Literary works by Deaf women signed in Malaysian Sign Language

The literary works by Deaf women in Malaysian Sign Language explore their challenges through six visual poems. Themes include aloneness, communication breakdown, gender inequality, and sexual violence. The poems aspire for empowerment amidst issues like alienation and denied communication, highlighting the experiences of a Deaf minority in a hearing world.

A Reminder of the Toothless Tiger — Persons with Disabilities Act, 2008: how can DBKL and other local authorities make a difference?

The Persons with Disabilities Act, 2008, while asserting rights to accessibility, significantly lacks enforceability and effective legal remedies. Local authorities like DBKL can enhance compliance and accountability by combining the Act with international standards, documenting failures, advocating for amendments, and using lived experiences to encourage reform, especially as Malaysia ages.

Teaching Hands Speaking: Two Tasks, One Love

The article discusses the importance of Deaf teachers in promoting Malaysian Sign Language (BIM) and the need for a deeper understanding of its linguistic aspects. It highlights the growth of BIM content on social media, while cautioning about potential misinterpretations of different signing systems. The author emphasizes structured learning from qualified sources as vital for effective communication with the Deaf community.

What Parkinson’s Feels Like

The collection “What Parkinson’s Feels Like,” featuring illustrations by Barbara Salsberg Mathews, captures global experiences of individuals with Parkinson’s disease. It emphasizes the disability’s profound impact on identity and autonomy, advocating for recognition beyond physical symptoms. The work promotes empathy, structural change, and highlights the importance of listening to lived experiences in addressing disability rights.

Elijah Irwin: From Darkness to Digital Voice

Elijah Irwin, who lost his sight at 34, transformed his writing journey from personal documentation to advocacy for the Blind community. Through accessible technology and his website, CoolHappenings®, he shares knowledge and empowers others. Writing became his voice, enabling connection and teaching, marking a significant shift in his identity.

Alexandra Elaine – UK’s first Deafblind Doctor

Dr. Soania Mathur reflects on her struggles with sleep disruption caused by Parkinson’s disease, detailing the physical challenges she faces at night. Despite her overwhelming fatigue, she navigates her environment, mindful of her husband’s sleep. Acknowledging the disease’s impact on loved ones, she finds solace in the dawn, reminding herself of gratitude amid adversity.

Letter: Accessibility is a legal obligation, not a welfare matter

The letter emphasizes that accessibility for persons with disabilities (PWDs) is a legal obligation rather than a welfare issue. It highlights the need for universal design and consistent infrastructure across all areas. Advocates call for stronger governance and the establishment of a dedicated committee to enhance accountability and ensure compliance with legal standards for accessibility in Malaysia.

Dr Soania Mathur: Sleepless in Toronto…

A Global Civil Society statement in defence of the UN & Multilateralism

A Global Civil Society statement in defence of the UN & Multilateralism The OKU Rights Matter Project joined in endorsing the global civil society statement urging defence of the United Nations as the global architecture for multilateralis 1,200+ Feminist Civil…